Today is World Lupus Day Part of Lupus Awareness Month
A Resource Guide of Ways to Get Involved in the Fight Against Lupus May 10, 2024
The Cruel Mystery
ThisThe Great Imitator
The Invisible Illness
These are all names that are used to describe Lupus, due to the nature and unpredictability of the illness.
Lupus Awareness Month is the perfect time to join the fight against lupus. This is why I decided to incorporate my lupus journey and lupus awareness into Bookworms Retreat. More about that later. You can help too! The information and resources in this post tell you how seasoned lupus advocates and newcomers alike can raise awareness and “Make Lupus Visible” which is what this months Awareness campaign is all about.
Ways to ‘Make Lupus Visible’ and Raise Awareness for Lupus Awareness Month
1. World Lupus Day - May 10, 2024.
WEAR Purple plus much more listed below.
Sponsored by World Lupus Federation, a coalition of Lupus patient organizations around the world.
https://worldlupusfederation.org
Established in 2004 to promote awareness for this little known disorder. It emphasizes the need for enhanced care health services, increased research in the area and treatment for lupus, earlier care and management of lupus, and better global epidemiological data on lupus.
World Lupus Day Link
https://worldlupusday.org
This is a big day to get involved and there is so much you can do on this 1 day.
1. Use Hashtags on Social Media
#WorldLupusDay
#MakeLupusVisible
2. Wear Purple and share photos
Today's Dress Code calls for Purple and Purple ribbons. Dress cute and post your pics for all to see.
3. Share your Story on Social Media
Are you a Lupus Warrior and living with this illness? Or do you know someone that is! Your Story can impact so many and spread awareness.
4. Lupus Awareness Toolkit (there is so much to share in here!)
https://worldlupusday.org/tool-kit/
Check out all the free graphics and templates that can be shared now!
Awareness and Advocacy Tools – Light Up the World
Media Tools – Media Letter, Lupus Fact Sheet
Government Proclamation- Proclamation, Government Leader Letter
Lupus Signs and Symptoms- Understanding is critical to raising awareness and reducing the time to an accurate diagnosis- Download Symptoms Checklist
World Lupus Day Logo – Available in color and greyscale
Lupus Fact images and Sample messages available in toolkit HERE.
https://worldlupusday.org/tool-kit/
STAY TUNED!! Lupus Awareness Month is all MONTH, not just today!
I will be sending more ways to get involved plus more education and knowledge about all things Lupus.
Until next time, put on Purple and let's Make Lupus Visible 💜🦋
Shari